Well 2 weeks before the UK went into lockdown I was at hospital having a camera inserted into my nose and had other tests. The diagnosis was Allergic Rhinitis, 2 months on I’m still waiting for test results to find out what it is I’m allergic too. However it could just be my fibromyalgia and the body is attacking itself. I have tried to chase up the results but the GP, hospital and NHS are understandably busy dealing the pandemic.
I’ve been in self isolation for almost a month now as all my medical conditions been I’m classed as a vulnerable person during this crisis. But the only trouble is all of the symptoms I get overlap with covid-19 symptoms, so I don’t know what is what. However one thing I can say is I feel terrible: physically, mentally and emotionally.
Social distancing is a very interesting thing at the moment. I’ve never been very social and social situations were very difficult for me with my autism but I’m finding that now everyone is social distancing its making parts of my life easier. I don’t have to try and make small talk or remember the correct social etiquette. I think neurotypical people (non Autism people) will find this a lot more challenging. For years I’ve been told to try and be more social to speak up and fight my corner, but now those rules have gone out the window and everyone is experiencing the world as a person who is introverted and doesn’t like social events.
As for the lockdown and having to stay inside, well that’s just been my normal life for 7 years. The outside world with my Autism, anxiety, depression and PTSD has been a scary place and its been better and easier for me to lock myself away and now the whole Country is doing it. People seem to forget that lockdown is their usual way of life. Hopefully now that the whole country has experienced it peoples attitudes will change, wishful thinking I know.
I struggle with recognising that I need help and struggle with asking for help. I have reached out to Bury Council, the government and mutual aid charities near me to get help with shopping and collecting medicines, so far everyone has said no. Even though I’m classed as vulnerable and self isolating people are refusing me help because I’m not elderly. I agree elderly people need and should get help but so should others. Everyone is trying to save lives and protect the NHS but by ignoring vulnerable people isn’t right, we have a lot of complicated medical conditions and would rather manage at home then put more strain on the health service. But at the time. Without help or coordination we are forced out to do shopping and collecting medications to make sure we stay alive and healthy, putting ourselves at risk and that could tax the health service later on. I struggle to ask for help, I’m very independent and I don’t want to cause trouble or make someone’s lives more difficult by asking them to do things. Even more so now that people are risking their lives to do it.
STAY HOME – PROTECT THE NHS – SAVE LIVES